Hi
ahh dont like to post re drug not working.
please dont read this and think wont for you.
we al vary alot as to what works.

so here goes

2 years exactly been on Methotrexate and today a Reverlation from Gp now agreeing with New Rheumy Methotrexate is NOT working for me.
ESR CRP consistently way to high not lowering.
so look forward see what Rheumy offers me sure there lot options.

some i know ive already discussed,told by old rheumy no anti tnf didnt qualify.
and anti tnf a no no for ttc anyhow.
Gps already said this.


feel rather cross,like 2 years wasted.
lucky for m i dont have Erosive RA or heads would roll for sure.

stressed i shall not get bad for RA!!!
Planequil wonder if he upps it to max it will enough on its own?

wait and see i guess.
MARCH NEXT APP.

Beggining think what have i done wrong that it not working it was at 1 stage for few months inflammtion was stable that was last summer.lol

iNKY07

umm yes in my opionion i thought it ahd but new rheumy and senior gp say it not ever worked well,be glad stop it and change.

should think be best settle onto something new before tc to get things calmed down.
lol anyone actaully been on mtx not worked what did your rheumy do?


melly

Mel, have you actually had a diagnosis yet? Sorry, I've probably missed some of your posts but I was under the impression they thought you had Lupus instead of RA.

What dose of MTX were you on?


Stewart.

Hi Melly,

Sorry to hear that MTX is no longer working for you. I can't see why you wouldn't qualify for Anti-TNF treatment if you've tried two other drugs and they've not worked. I am sure someone will pick this up and be able to advise you better, but I think it has something to do with the NICE guidelines and criteria that has to be met for prescribing Anti-TNF drugs.

Love,

Barbara
XXXXX

Hi Stewart hope u doing good

Umm nice to see u online

diagnosed sero negative RA feb 2008,previously diagnosed inflammatory arthritis but treated as RA age 17,diagnsoed fibromyalgia november 2009 put onto amitripline for this.
still undergoing test for systemic lupus Erythematosus put onto Planequil november 2009 new rheumy and old rheumy prescibed to treat noted by him lupus symtpoms at min dose to see how tolerate it.


now non erosive arthritis WITHOUT WORD Ra in it would mean only have lupus this not confirmed,so what was a diagnosis of sero negative RA is now taken away from me.
for now its called sero negative non erosive inflammatory arthritis.
due to no postive rf factor since age 21 where that showed up twice.




stop and think u been on medication find out its not working but only after 2 years,

so for now im to kept on medication that works for both SLE and RA.
and being watched for signs,awaiting results of tests for Hughes syndrome or some know as APS.
due to sytmpoms consitently showing up as may also have this.

think that covers all those queries for u.

u probarbly not meaning any harm but right now for replies to ask me well are u diagnosed with this that is really very upsetting considering what ive clearly stated what ive been going threw this last year plus.
to me that implies several dont believ anything i post about new diagnsois.
stop think how ud feel if someone said this to you when your specialist had done test and confirmed what u had.


Thankyou barbara,yes that was under old rheumy re anti tnf so maybe new one will differ in his opionion he has picked alot things that hd been consitently missed.
hence the new bits diganosed with.

aprently hes more speicialsied and knows alot about lupus and mctd etc.
thank god for him.

melly

Mel,

Just because they can't find the rheumatoid factor doesn't mean they won't diagnose you with RA. My Consultant tells me that there are people with the rheumatoid factor that never show any signs of the disease all their life. It is just a guide....another one! The only caveat to that is for those people who have the RF and suffer symptoms of the disease then their prognosis is usually not so good!

Hope I haven't upset you........ I don't usually upset people!

Hi
oh yes forgot say.
no rheumatoid factor just means its Sero negative RA Thats why rheumy put me on mtx.
anyway thanks for tips.

at moment rheumy said its either SLE type Lupus or RA.
so in view of that said i have to be given medication that works for both conditons.
He dids ay im to carry on going to the speicialist RA clinic.



oh im so looking forward to next appointment.
nras have given me some drug info to look at.

seems silly kind of dont want stop mtx as concerned about having big flare yet at same time it givin me such hassle and not alot help calming things down for me.

so i pray i do see new rheumy again and not old one as new one more keen to try different things,suppose could ask be seen by him (new one that is.)
anyhow for now im flaring mini flare.
so off to rest.

Inky07

Hello Nina nice see u online
yes they havnt increased it yet though my appointment not till march so hope they will do so then,remove mxt and maybe add something else and possibly increase the amtirlpine also as think may need slightly higher dose of that also as fibro pain is now not completley under control as it was at start of taking 10 mg.
see what rheumy says.

t care u lv inky07

Hi debbie

ahh thanks hun,been on planequil now since november so thats what umm 2 months just over only at 200 mg so far,not yet ttc as still on mtx not allowed just stop it so when see rheumy i shall say right lets take me off it and ask up planequil see whats else he offers.


i have alot fill him in on-shall discuss that lupus site though as more apriopiate.
lv melly

Hi Jean
yes i have been but not got results yet will get them march at next Rheumy appointment,
i can give u link for hughes syndrome foundation if u like.
http://www.hughes-syndrome.org/index.htm
there go.

not bothered look into it much myself dont feel i have it see what rheumy says march.
t care melly